Barriers to ILD care | ||
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Themes | Categories | Examples: |
Travel | Distance | “I think the biggest challenge is just the distance that you have to travel from home to Indy. It's a three-hour drive for us” |
Travel burden | “I had to bring my own oxygen. So I think I had 32 oxygen tanks in the back of her truck” | |
Cost | Money | “The money, the cost to drive to Indy can be a burden” “I mean, they're (PFTs) expensive” |
Time | “it's a 90-min drive each way just to go to the doctor's office” | |
(Un)Availability of local expertise | Healthcare | “A small town might have its advantages, but when it comes to healthcare, not so much” |
ILD familiarity | “In my area, people don't really know about it” | |
Resources | “They don't have the equipment (PFTs)” |
Facilitators to ild care: telemedicine/home monitoring | ||
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Themes | Categories | Examples: |
Improved Access | Health care team | “I think you might be able to get in sooner” |
Resources | “You can do it at home (PFTs)” | |
Savings | Time | “And you don't have to travel down to Indy with no oxygen tank.” |
Money | “It's something that's probably very cost-effective for both patients and doctor” | |
Home Monitoring | Awareness | “While I don't know what some of the numbers mean, I can certainly see the trends, and if I see the trends going badly, then it gives me an opportunity to call the doctor's office” |
Empowerment | “I do believe it empowers the patient to be more of an advocate for their own care” |
Technology: merits/limitations | |
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Themes | Examples |
Merits | “Well, I think technology is the way of the world now, so I think the right devices and the right things to help manage your disease, it can't do nothing but help” “Well, it's better, and it's faster, and it's much more convenient” |
Limitations | “One disadvantage is they can't actually see you hands on. He can't listen to my lungs on telehealth or something like that” “I just think personal contact is important” “The disadvantages are, as I mentioned, the low signal strength and just, essentially, lack of coverage where I live” |