Table 1 Data collection at baseline, exacerbation and follow-up in the BE-China
Baseline | Annual follow-up | Exacerbations |
|---|---|---|
Mandatory data collection | ||
 Enrollment date | Follow-up data | Symptoms |
 Age | Age | Spirometry |
 Sex |  | Microbiological profiles |
 Body mass index | Body mass index | Treatment |
 Socioeconomic status (including education, occupation, medical insurance and annual household income) | Socioeconomic status | Blood and sputum samples if possible |
 Smoking history | Smoking history |  |
 mMRC score | mMRC score |  |
 Sputum color assessment | Sputum color assessment |  |
 The number of exacerbation and hospitalization in the past 1 year before recruitment | The number of exacerbations and hospitalizations per patient per year |  |
 Comorbidities | Comorbidities |  |
 Spirometry | Spirometry |  |
 Imaging tests | Imaging tests |  |
 Aetiological tests | Updated medical history and laboratory tests to determine the aetiology of bronchiectasis |  |
  Blood cell counts |  |  |
  Total lgG, lgA and lgM |  |  |
  Tests for ABPA (total lgE, specific lgE to Aspergillus etc.) |  |  |
 Microbiological profiles | Microbiological profiles |  |
 Chest physiotherapy | Chest physiotherapy |  |
 Respiratory medications | Respiratory medications |  |
 Specific aetiological treatment | Specific aetiological treatment |  |
 Vaccination status | Vaccination status |  |
 Gastroesophageal reflux disease questionnaire |  |  |
 Quality of life-Bronchiectasis Questionnaire | Quality of life-Bronchiectasis Questionnaire |  |
 Bronchiectasis Health Questionnaire | Bronchiectasis Health Questionnaire |  |
 Leicester Cough Questionnaire | Leicester Cough Questionnaire |  |
 Hospital Anxiety and Depression Scale | Hospital Anxiety and Depression Scale |  |
Recommended data collection | ||
 Autoantibody tests (ANA, ENA and ANCA) |  |  |
 Complement C3 and C4 |  |  |
 α1-antitrypsin deficiency: serum α1-antitrypsin and genetic tests |  |  |
 Cystic fibrosis: sweating test and genetic tests |  |  |
 Ciliary function test: nasal FeNO, high-speed video analysis, transmission electron microscopy, genetic testing |  |  |
 FeNO |  |  |
 6 min walking distance |  |  |
 Arterial blood gas |  |  |
 Echocardiography |  |  |
 Serum, plasma, blood cells, sputum, lung tissue |  |  |