From: The opportunities and challenges of social media in interstitial lung disease: a viewpoint
Organization/group | Social media platforms | Description |
---|---|---|
ILD specific organizations / groups | ||
Action for Pulmonary Fibrosis | Twitter (@ActionPFcharity) | Patient-led charity that provides education, support, and research funding |
Breathe support | Online network and support groups created by ILD patients and caregivers | |
Canadian Pulmonary Fibrosis Foundation | Facebook, Twitter (@THE_CPFF) | Canadian non-profit organization that provides education, support, and research funding |
European IPF and Related Disorders Federation | Facebook, Twitter (@EU_IPFF), LinkedIn | Non-profit organization that unites 21 national ILD patient associations across Europe |
PF Warriors | International patient-led support group for ILD patients and caregivers | |
Pulmonary Fibrosis Foundation | Facebook, Twitter (@pfforg), Instagram (@pfforg), YouTube | American non-profit organization that provides education, support, and research funding |
Pulmonary Fibrosis News | Twitter (@pulmonaryfibros), Instagram (@pulmonaryfibrosisnews) | Media company focused on reporting ILD-related news and research |
General respiratory organizations / groups | ||
American Lung Association | Facebook, Twitter (@LungAssociation), Instagram (@lungassociation), YouTube, LinkedIn, TikTok (@americanlungassociation) | American non-profit organization providing respiratory-related education, support, advocacy, and research funding |
British Lung Foundation | Facebook, Twitter (@lunguk), Instagram (@britishlungfoundation), YouTube | UK-based charity providing respiratory-related education, support, advocacy, and research funding |
European Lung Foundation | Facebook, Twitter (@EuropeanLung), Instagram (@european_lung), YouTube, LinkedIn | European patient-led non-profit organization which provides respiratory-related education, support, advocacy, and research funding |