Table 1 Main domains Symptoms, Functional Impairment and Quality of Life of the Nijmegen Integral Assessment Framework
Sub-domain | Definition | Instrument (subscales) |
|---|---|---|
Symptoms | Â | Â |
   Subjective Symptoms | The patient's overall burden of pulmonary symptoms | PARS-D: Global Dyspnea Activity, Global Dyspnea Burden, Dyspnea Activity [7]; QoLRiQ: Breathing Problems [33] |
   Dyspnea Emotions | The level of frustration, depressive feelings, and anxiety a person experiences when dyspnoeic | DEQ: Frustration, Mood, Anxiety [7] |
   Expected Dyspnea | The level of dyspnea that a patients expect to experience during specific activities no longer performed | PARS-D: Expected Dyspnea [7] |
   Fatigue | The level of experienced fatigue | CIS: Subjective fatigue [34] |
Functional Impairment | Â | Â |
   Actual Physical Activity | The actual physical activity a patient performs during two weeks | Aktometer (electronic accelerometer) [22] |
   Behavioral Impairment | The extent to which a person cannot perform specific and concrete activities as a result of having the disease | SIP: Body Care & Movement, Home Management, Mobility, Ambulation [35] |
   Subjective Impairment | The experienced degree of impairment in general, and in social functioning | QoLRiQ: General Activities, Social Activities [33]; Global Impairment [7]; SIP: Social Interaction, Burden [35] |
Quality of Life | Â | Â |
   General Quality of Life | Mood, anxiety, and the satisfaction of a person with his/her life as a whole | Satisfaction With Life Scale [36] Symptom Check List: Anxiety [37] BDI: Primary Care [38] |
   Health-related Quality of Life | Satisfaction related to physiological functioning and the future | Satisfaction Physiological Functioning, Satisfaction Future [7] |
   Satisfaction Relations | Satisfaction with the (absent) relationships with spouse and others | Satisfaction Spouse, Satisfaction Social [7] |